A Natural Remedy for Lichen Sclerosis

I heard about a stem cell procedure that has helped many. It was started a few years ago by a Dr. in Italy, however, there is a Dr. Nathan Newman, in Bev. Hills, Cal. who does the procedure. You can google him and learn more about this surgery. A lady I met on the Yahoo LS site has had this procedure and is very excited about it. We are in touch on a regular basis and she is reporting her progress. I think this may give us all a lot of hope.
Also, after years sometimes the labia, clitoris, etc. may unfuse naturally. I started using castor oil about 7 weeks ago and notice my labia starting to show more definition and appears to be unfusing. I don’t think I would do the surgery unless the LS affected my bodily functions.

I was diagnosed with LS almost 2 yrs ago. I was wondering if anyone on this forum lives near a battery recycling plant,or an industrial area. My sypptoms seem to be linked to this,as the battery plant opened up approx 3 yrs ago. They have failed every EPA emissions test that they have been given,and the EPA has even given them untill 2017 to “Comply” with the EPA standards. I had read a story about a little boy who was helping his Father to repair some boards under his house,and retrieve some items from the crawl space,as his Dad couldn’t fit under the house. The little boy contracted LS,and I Do believe this horrible condition is either Chemical/biohazard related, or environmentally. I also have a horrible skin disorder that won’t go away,with lesions that are extremely painful. Dr tried to tell me that I have a thyroid disorder,but after the dr’s negligence of failing to call in my prescriptions,I fired him, and stopped taking the Synthroid he prescribed. Now, I’m taking a weigh loss suppliment that you can get at any store, and my thyroid is ok. I take the vit B6,vinegar,and kelp. I’m trying to find the Algamath Blue Green Algae,so if anyone knows where I can find this,let me know.( I heard that this is helpful for many memopausal symptoms,and they also seem to be related). I was prescribed a corteosteroid,and it seemed to help with the itching,and redness. I have also had a biopsy,which removed a lesion in my vaginal area. I have the atrophy that a lot of the other posters also have,and I feel “Unprotected” and suseptible to getting more infections. My labia have almost disappeared. I have always had a great sex life,untill 6 yrs ago,when my partner passed away. I swore I would not have any more relations with anyone,untill they found a cure for venereal diseases,and then I somehow contracted this horrible disorder of LS. Now, I have met someone who I would like to have a relationship with,and I can’t even tell him whether I can even Have any relations or not,because I’m not so sure anymore,and I really don’t know.

PLEASE CAN SOMEONE HELP ME???

I have SL and u can’t take it anymore
I’m so self conscious even though it’s on my private on the sides and the pubic area and a little under armpit and tiny tiny all over back n legs although that’s not so noticeable the private part area is and I’m only 18 and I’m do scared I won’t be able to find someone who will want to marry ne knowing I’ve got this disease or even have children !!!! please tell me what shall i do?? I take vitamin C and E everyday I am going to try purple emu oil I have had SL for nearly 3 years now?? please tell me how to make it go? shall I try red clover ??? will it help?? anyone please x

Hi; I’ve just been diagnosed with advanced LS. I haven’t had itching for over 25 years, and was checked for “everything” back then and nothing was found. The diagnosis was a big surprise to me after complaining to my doctor about painful intercourse. It sounds like our immune systems have been damaged & are very confused – as they are now attacking our own cells (LS is a type of skin reaction to something). Go to Wikipedia for a good explanation & read it to the bottom of the page for cures. I would highly suggest cutting out all foods that could be causing allergic/intolerance reactions in your body & don’t rely on allergy tests – listen to your body by keeping a journal of reactions. This will help you fight the LS – give your body some rest from dealing with “foods” that are probably bothering it. It can take minutes to days for reactions to happen and also to clear up; wheat & dairy products are the worse (no matter what the “Low Oxalate Diet” says it has GF (gluten free) recepies too). Please read the books “Allergies: Disease in Disguise” by Dr. Carolee Bateson-Koch and “Wheat Belly” by Dr. William Davis (in libraries – you can reserve it). Also some people out there are into the “Low Oxalate Diet” see http://lowoxalate.info/.

I have suffered for 14 years with LS and I have tried almost every treatment available, I also have cortisone shots in my labia every 8 weeks, they offer the most help… but they are so painful. I usually get 4 shots on each side of the labia. I just wish people understood how painful LS is. Its so embarrassing to talk about so I’m glad there is someone that understands. …Just wish you guys didnt need to suffer too. Where do i get this oil?

I found a low oxalate diet, and my life is almost back to normal. I am excited to say my husband and I are both very happy about it! I noticed results on the first day of the new diet, and it gets better and better with each day. I am expecting a full recovery from LS.

hello guys
i am sourav i too have LSA and i am a man….i have a lot of difficulty in finding doctors in INDIA…most of them have never heard about this disease ever….earlier they just clinched money from me but finally i got one doc who atleast diagnosed it as LSA,……..i ll like to know if any indian is here in ths forum as i have connected to 2 more indians whom i know are suffering like me and i can be of help to them and they can help me
my current condition os that though my foreskin is in a better condition as compared to earlier days but my glans i think have got effected…….recently i have noticed that white dead skin type material comes out of my glans i dont know what is it LSA or dermatis…..tommorow i amseeing a doc………………………..this disease is freaking me a lot ….it has been difficult to manage my job and treatment….but still i have to do it.I am 25
Aysha we all share same condition. I have met a girl who has same condition and we discuss over

I was diagnosed with LS about a year ago but believe I have had it since my early twenties. It started as an itch that only occurred during my monthly cycle. I began to think I solely had an allergy to pads but I never imagined this. It’s true that this will ruin your sex life and relationships unless you can find a way to manage it for months. A day doesn’t go by where I don’t have itching, burning, sores or all of the above. My boyfriend is not happy. I’m only 31 and feel that I cannot please him and will not have another man in the future if he finally has enough. I have been on the oily steroid cream alongside diprobase and previously had another. They work for half a day but I worry about their effects. I tried emu oil but saw no difference and hemp oil didn’t work either. What I can’t find is clear concise info on coping mechanisms and diets, there is information overload but most of it is anecdotal or contains methods I have tried. There’s also no consideration for the women who get this condition who are not menopausal and should be in their sexual prime. I am confused and hoping this will just go away.

I am a female in early forties with LS and have pretty much determined that it is linked to both diet and hormone imbalance. I suppose this makes sense when you consider that when hormones decline or are out of whack, it makes the body’s immune system weaker which makes us less able to handle food allergies and intolerances.

I was lucky enough to find experts in LS early on, or at least docs who learned from the experts. Medical community started noticing a link to Estrogen when they found that it went away in girls who had it, after they hit puberty and started getting their periods (and producing more estrogen by this time in life). Testosterone too, has played a key role in topical treatments studied and found to be successful.

It is key to find a doctor who knows what they are doing or willing to read the journals with studies by the experts and not to guess haphazardly or irresponsibly keep you on the wrong type of steroid or too high dosing of the right one, and they must be willing to address hormone and allergy components.

I have managed it fairly well with a compounded estrogen cream and testosterone ointment applied 3 x per week which is what the skin cells would have gotten from my own body’s production when younger. It is imoortant for doctors to research the Mayo Clinic study on this to get the dosing correct when writing the prescription for the compounding pharmacy! This is important!

All the docs I have talked to said that Temovate ( or its generic), is the only steroid cream strong enough to prevent the serious deterioration of the skin over time but that after the initial dosing schedule of Temovate, at frequent intervals, it is important to taper to a maintenance dose of twice per week and then even once per week to prevent steroid induced thinning of skin.
Bioidentical systemic hormones when low, are helpful too. For young women on the bc pill w LS, try going off it and see if symptoms improve.

Diet changes though, as others on here advise, is what I have found to offer rapid and amazing results. Removal of dairy especially,including whey protein offers huge relief withn a few days if not sooner. I too, am about to start Gluten free and attempt a full paleo diet, as the short term experiments I have done with not eating carbs were with good LS results. My mom has nasal allergies and went off gluten and all allergies have gone away so I am hopeful re: gluten and LS…..Also tons of pro biotics!

I have recently been diagnosed with LS. I was put on steroid for two weeks. I am now trying probiotic yogurt and calendula cream. If I begin mto itch, I put on steroid cream just one time. Am doing much bettter.